When the Insurance Credits Disappeared, So Did My Mental Health Access

Rolled up dollar bills spiral out of open orange prescription bottles. A lid reads “hold tab down, turn.”

As early as I could remember, I’ve been conditioned to believe that being an overachiever ensures success. But after I gave birth, my postpartum blues didn’t gradually decrease — they got louder. So loud that I felt disconnected from my family and myself.

I’m a late-diagnosed Black woman living with ADHD, PMDD, anxiety, depression, and CPTSD. For years, I tried to function without medication because that’s what I was taught to do. However, mental illness runs in my immediate family and I wanted to break the generational curse of not addressing it. After almost two years of mental health prescriptions, the few interruptions I’ve had have made me reflect on how vulnerable and raw I’ve been navigating society.

It’s hard to explain to people who’ve never lived with invisible disabilities how hard it is to live life. I second-guess everything. My insomnia spikes. My executive functioning short-circuits. My friendships suffered because I became distant and disappeared without notice. My need for constant dopamine dominates my day because I have to force myself to focus — which leads to procrastination, perfectionism, and a nonstop struggle to balance parenthood, adulting, and maintaining boundaries.

Medication gave me my life back. It gave me balance. It made me functional in ways I hadn’t been before. I could finally see things clearly and the background noise was gone.

Then the insurance credits disappeared.

As a freelance writer, I’ve held more contract positions than W2s at this point, placing me squarely in the gig/creative economy. Marketplace insurance wasn’t a luxury for me; it was my lifeline. All it took was sixty days for that to unravel. In the first thirty days, my medication costs went up. Three months later, my insurance lapsed. The tax credits that had made my plan affordable were eliminated. What had been manageable became a $600 monthly insurance bill and a $1,000 quote for a single prescription.

Every calendar month, my anxiety spikes because I have to juggle an already stretched budget to afford the medication I need to survive. I’ve tried to reason with myself because I’ve been unmedicated before; maybe I could do it again? But I couldn’t. What I experienced without medication isn’t just discomfort. It feels like a system failure. Invisible disabilities in an ableist society make you an invisible punching bag because I’m expected to perform neurotypical productivity while managing conditions that most people will never see and never acknowledge.

Black women are already undertreated for mental health and maternal health conditions at disproportionate rates. The marketplace credits saved lives and without them, many feel like they are on borrowed time. Mental health treatment isn’t optional for those of us who are neurodivergent. For people like me, it is the difference between functioning and falling apart — between showing up for my daughter and disappearing into myself — not a political agenda.

Policymakers who treat healthcare access as an economic line item have never had to choose between groceries and the medication that keeps them present in their own life.

I have. Every month now, I do.


Erika Hardison (she/her) is a Chicago-born cultural journalist, critic, and founder of Fabulize Magazine. A Lambda Literary Award finalist and Schomburg Center moderator for nearly a decade, her work has appeared in Reactor, Publishers Weekly, USA Today Reviewed, and HelloBeautiful. She is currently writing So You Think You Know Static with University Press of Mississippi.

About Rooted In Rights

Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights.

Represented but Not Present: Mental Health and Conference Access

A group of 10 representative wooden figures cluster together on a blue background. A red x marks an empty space in the group. A single wooden figure sits to the right of the group, alone.

As the Global Mental Health Summit approaches in Perth, Australia this October, a pressing question I always ask is, “What does representation look like for people with mental health diagnoses during conferences?” In my experience, too often the question is answered by who is missing in the room. 

Think about it: representation means more than having the same faces in panels or our names printed on programs. We exist not as a statistic or case study but as humans who have to experience the realities of an invisible illness. I acknowledge that a lot of dynamics go towards arranging such events, but, not prioritizing attendance by people with lived experience is a glaring inconsistency.

At the 2nd National Mental Health Conference held in Nairobi last year, the space remained inaccessible to many of the people it sought to represent; the most glaring barrier was financial access, with an entry fee of KSh 18,000 ($139) for the 3-day event leading up to World Mental Health Day. For someone living through the everyday realities of a mental illness, medication, therapy, and navigating intermittent work due to health, attending this conference was not possible. Kenya has a funding gap, with 0.1% of the total national health budget allocated to mental health, well below the global average of 2%. Sponsorship opportunities were limited, which quietly filtered out lived experience voices. Thankfully, I was supported by a partner organization. Though I attended, I questioned how representative the conference was and who could not prioritize a conference over the day to day management of their conditions. 

Following my attendance at the National Health Conference in Nairobi, I was invited as a virtual speaker for an International Disability Conference. It was great learning the ropes of engaging other disabilities aside from psychosocial disabilities, where mental health lies. However, I experienced something unexpected. Unfortunately, despite clearly communicating that I was under the weather as we were preparing for the event, my health was not prioritized, acknowledged, or factored in. 

We call for inclusion, yet resist the discomfort that true inclusion means. Is it inclusion if I could only participate as long as my disability was not a factor? I was shamed for speaking up and called unprofessional for eventually not making it to the conference despite communicating consistently. Granted, they sent out an apology after speaking up for myself; however, it did not seem sincere enough to acknowledge that, despite having bipolar, I do have a voice, and it matters. Ironically, my presentation focused on experiences of directing a personal mental health film, developed over a period of five years, and how stigma and personal narratives call for inclusion. Should I not have stated my health concerns?

These conference experiences reflect the long way we have to go as far as representation is concerned. In 2025, a friend attended the Global Mental Health Summit in Cape Town, South Africa, and the coordination and conversations were well worth her time, with a key focus on outcome-based solutions that prioritize an individual’s well-being post-treatment and recovery. I hope to attend the 2026 Global Mental Health Summit in Perth, Australia. I also hope the summit will offer true and equitable representation of the very people it aims to center. 


Noella is a Kenyan filmmaker and the founder of Mental Voices Africa, which uses storytelling as an advocacy tool. She believes stories help communities feel seen, heard, and valued, and works to create safe spaces where mental health is visible, shared, and treated with dignity. She serves on the Lived Experience Council for the Healthy Brains Global Initiative (HBGI) and is a Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN-Europe) Expert by Experience.

About Rooted In Rights

Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights.