True Advocacy for Dwarfism Awareness Month

A young, long-haired brunette woman with dwarfism wearing brown sandals, denim shorts, a gray vest, and a straw handband on her shoulder walks outdoors in front of a dark gray wall.

CONTENT NOTE: contains derogatory slur related to community

October is Dwarfism Awareness Month. Not many people know this, but you can be forgiven for that; there are so many days and months that are now dedicated to raising awareness for certain causes. For example, October is also Down Syndrome and ADHD Awareness Month.

But are these events actually effective? Or are they token gesture events that are forgotten about by the end of the month? The derogatory representations, such as “midget” wrestling continue and the inaccessible buildings still stand. Thus, if we want true awareness, we need to fight any inequality—no matter how uncomfortable it may make us—all year round. 

During Dwarfism Awareness Month, my social media feed will become inundated with posts trying to raise awareness about dwarfism: from stating that “there are over 200 types of dwarfism,” to posting pictures of trident hands, a common feature for people with achondroplasia. Whilst it is awareness, it does not do anything to change attitudes towards dwarfism.

A picture of a trident hand will not change society’s perception of dwarfism. Furthermore, what is the point of telling people there are 200 types of dwarfism? It will not change attitudes or challenge inequalities in society that people with dwarfism regularly encounter.

Maybe, for someone partaking in dwarf tossing, they might wonder which of the 200 types the person they are tossing has. Furthermore, not many other people will see these posts, except for people with dwarfism like me. What others see are mostly derogatory representations of dwarfism that are prevalent throughout the rest of the year and shape how we are perceived. 

Aside from these posts, Little People of America (LPA)—the world’s largest association for people with dwarfism—has designed a dwarfism pride flag. The flag is a combination of various shades of green blocks with a blue spine down the edge. LPA’s online store sells all sorts of merchandise specifically featuring the new pride flag, which you can buy to show your support for dwarfism awareness.

But how does a green flag promote awareness? Like the various LGBTQ pride flags, will it just be adopted by companies as a token gesture of support? An easy way to show support without tackling any of the injustices we experience? If I use the tote bag for shopping, will it mean that supermarkets will suddenly consider my access needs? Or will it stop other customers from pointing and staring at me? Of course not. 

We need to be raising awareness throughout the year—challenging misconceptions that have been around for centuries, which cannot be done with flags, t-shirts, and pictures of trident hands. So for Dwarfism Awareness Month, I won’t be doing any of that because it’s ineffective. Instead of the same routine, we need to be advocating for good examples of representation, like Kiruna Stamell in the BBC drama “Doctors” or Peter Dinklage in “Game of Thrones.”

And, perhaps most importantly, we need to be holding society accountable for the harm caused to our community, like the work I’ve done campaigning for various confectionery companies to drop the slur “midget” from their branding. Another great example is the work of Angela van Etten, who has worked to ban the “entertainment” practice of “midget tossing.” Real change comes from advocacy that challenges the status quo. Real activism comes from calling out and challenging everyday inequalities.


Dr Erin Pritchard (she/her) is a senior lecturer in Special Education Needs (SEN) and Disability Studies at Liverpool Hope University. She is also a core member of the Centre for Culture and Disability Studies. Her work specialises in cultural representations of dwarfism and how they shape social attitudes towards people with dwarfism. Her books include: Dwarfism, Spatiality and Disabling Experiences; Midgetism: The Exploitation and Discrimination of People with Dwarfism; and Dwarfism Arts and Advocacy: Creating Our Own Positive Identity.

Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights

Disabled People Can Sexually Harass and Assault People, Too

A female-presenting person shown from the nose to the neck, with duct tape over her mouth, indicating silence.

There are many reasons as to why women who have experienced sexual harassment or abuse do not come forward straightaway, including the fear of not being believed. Such disbelief often stems from the perpetrator not matching stereotypes of the sort of person who would commit such an act, i.e. the perpetrator being disabled. This is because disabled people are often considered asexual, which can lead to dismissing the fact that disabled people too can be capable sexual assault or harassment. I have experienced first-hand unwanted sexual attention from a man who shares the same impairment as myself – dwarfism – and with whom I had refused to go on a date.

It happened while I was trying to recruit participants for my PhD research. My thesis focused on the social and spatial experiences of people with dwarfism in the UK. It was a qualitative study, so I was required to go out and recruit people with dwarfism. To do this, I attended a few events held by different associations for people with dwarfism. These events allow people with dwarfism to meet up and socialise without the risk of experiencing the usual unwanted attention that people with dwarfism experience in society, such as being stared at, photographed and called names. It comes as a welcomed relief to be able to socialise in a space in the same way that the average sized person gets to on a daily basis. Whilst it was supposed to be a safe space for people with dwarfism, it also allowed for some of the same unwanted behaviours to arise that unfortunately also occur in everyday society, including unwanted sexual attention.

Whilst at the event, a man asked me to be his date for the disco the association was holding that night. A research project by Robert Kruse (2002) noted that conventions held by associations for people with dwarfism allow their members to meet one another and find a “romantic” partner.  Whilst I do not see this as an issue when the feeling is mutual, when someone refuses a date that should put an end to the matter. I refused his offer of a date but the nonetheless this did not stop the man from imposing his attention on me.

For the evening meal, I was placed at the same table as him. I spent more time speaking to another person than I did with him. After dinner, when I went off to get coffee, he followed me and persisted in his unwanted sexual attention. I distanced myself from him, and later spoke to my PhD supervisors about the incident and reported it via email to the association.  No action was taken. I was told that it would be brought up at the next committee meeting, but didn’t hear back from them until they read what had happened in my PhD thesis. I was told that after reporting the incident in my thesis, that there was conflicting evidence, but they didn’t explain what it was, or ask me for a detailed statement was never taken from me. I felt reporting the incident had been a waste of time, and also had negative repercussions for me.

Being disbelieved can make you feel like a liar, which has affected me emotionally. I often think about whether or not I was to blame and question my self-worth. I had supposedly done what was expected by society, however, I felt it had only made things worse for me. Now, the association that I reported the incident to never acknowledges the wealth of academic and non-academic work I have done in regard to raising awareness for dwarfism, despite that being one of the aims of the association. This makes me feel like a pariah, who has done wrong for speaking out against sexual assault. Even now, I worry about the repercussions of daring to speak out about what happened to me.

References:

Kruse, R. (2002) Social spaces of little people: the experiences of the Jamisons. Social and Cultural Geography. 3 (2) 175-191


Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights

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