Parenting
When Real Life for Disabled People Seems a Lot Like Post-Apocalyptic Fiction, is there Hope for the Future?
Ever since I was a little kid, I looked to books and other media as a way to escape my everyday life. Whether it was sci-fi films like Star Wars, uneasy space bounty hunter tales in video games like …
How Do You Figure Out Who You Are When You’re the Only Disabled Person in Your Family?
Your glasses scare people,” said my mother, matter-of-factly. The comment stung, but I knew she was correct. We were discussing why, at 16 years-old, I could not get very many babysitting jobs in my suburban neighborhood. My sister had just…
How My Parents Helped Me Find My Disabled Identity
I have always loved the way drums sound. During parades, my focus was always on the marchers with the snares; while at concerts my neck was perpetually craned as I struggled to see over the taller members of the crowd …
No, I’m Not the Patient: Caring for an Aging Parent When You’re Disabled and Everyone Thinks You’re the One Dying
Caring for an aging (or ill) parent or loved one is always complicated. That subtle shift that takes place over time— where the parent becomes the one being cared for, instead of the other way around. It’s a journey as…
VIDEO: New Disabled Parent Adventures in Advocacy
Happy Mother’s Day! Today is a day where we all celebrate our mothers. But did you know that parents with disabilities are far more at risk of losing custody of their children than non-disabled parents? Removal rates can be as…
As a Chronically Ill Mom, Even Tater Tots Are a Way to Show My Kids Love
My Nonnie was a gruff and funny woman who, even at Thanksgiving, put a huge slab of lasagna on our plates as an appetizer. Even with a turkey, mashed potatoes, sweet potatoes, breaded cauliflower, oil and vinegar salad, pumpkin pie,…
I’m a Mom with a Disability. Here’s How I “Run the Show” in My Family.
I have several roles and identities that add a lot of meaning in my life. First and foremost, I LOVE being a woman. I like pink and sparkles and unicorns. I was raised by some incredibly fierce women: my mother, …
Disabled People Have the Right to Raise Children
I didn’t see many families like mine growing up. All my childhood friends’ parents had cars and could drive. My mom was visually impaired and had Ehlers-Danlos syndrome. She was the first person to teach me that I shouldn’t be …