National Spina Bifida Awareness month is currently taking place, and parents and kids with Spina Bifida are enthusiastically celebrating. People all over Kentucky came together recently to create a music video debunking stigmas around Spina Bifida. Set to Taylor Swift’s new song Shake it Off, the video begins with the following statements, “Spina Bifida limits our potential. We have poor quality of life. We suffer daily…That’s what people say…” And to prove those statements wrong, next we see a compilation of shots of kids and adults with Spina Bifida showing off their dance moves to Swift’s hit song, as well as playing sports and hanging out with friends.
According to the Spina Bifida Association, SB occurs when a fetus’ spinal column doesn’t completely close. One in eight babies have SB or something similar, making it “the most common permanently disabling birth defect.” Spina Bifida usually results in the necessity for the person to use assistive devices, such as crutches, a brace, or a wheelchair, to move around independently. The use of these types of assistive devices is most likely the cause of the misunderstandings and stigmas around SB.
WDRB News, a Kentucky news station, met with some of the parents and children included in the video, to discuss their experiences with Spina Bifida. The news story follows the “Shake it Off” music video below.
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