Family
From parenting, to caregiving, to understanding who we are, these pieces focus on navigating family dynamics and disability.
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No, I’m Not the Patient: Caring for an Aging Parent When You’re Disabled and Everyone Thinks You’re the One Dying
Caring for an aging (or ill) parent or loved one is always complicated. That subtle shift that takes place over time— where the parent becomes the one being cared for, instead of the other way around. It’s a journey as…
My Son’s Disability Taught Me to Be Proud of My Own Disability
When I was born, the doctors told my parents I was blind. That was the first line of my college application essay and the narrative starting point of my life. My parents took me to the doctor because my eyes…
VIDEO: New Disabled Parent Adventures in Advocacy
Happy Mother’s Day! Today is a day where we all celebrate our mothers. But did you know that parents with disabilities are far more at risk of losing custody of their children than non-disabled parents? Removal rates can be as…
As a Chronically Ill Mom, Even Tater Tots Are a Way to Show My Kids Love
My Nonnie was a gruff and funny woman who, even at Thanksgiving, put a huge slab of lasagna on our plates as an appetizer. Even with a turkey, mashed potatoes, sweet potatoes, breaded cauliflower, oil and vinegar salad, pumpkin pie,…
I’m a Mom with a Disability. Here’s How I “Run the Show” in My Family.
I have several roles and identities that add a lot of meaning in my life. First and foremost, I LOVE being a woman. I like pink and sparkles and unicorns. I was raised by some incredibly fierce women: my mother, …
Disabled People Have the Right to Raise Children
I didn’t see many families like mine growing up. All my childhood friends’ parents had cars and could drive. My mom was visually impaired and had Ehlers-Danlos syndrome. She was the first person to teach me that I shouldn’t be …
My Mother Thought I’d Be Better Off Dead Because I’m Disabled
Trigger warning: this post discusses, in graphic detail, abuse and violence against a disabled family member. I wait patiently to hear the truck crunch through the gravel-filled alleyway. I have 30 minutes – probably less. I scour the fridge for…
Why Finding Cures for Genetic Disabilities Shouldn’t Be Our Main Goal
Iceland was recently the subject of controversial headlines proclaiming that the country is “eliminating” Down syndrome through prenatal screening and subsequent termination of pregnancies. While these news stories were later found to be sensationalist, we need to discuss the …