Family
From parenting, to caregiving, to understanding who we are, these pieces focus on navigating family dynamics and disability.
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As a Chronically Ill Mom, Even Tater Tots Are a Way to Show My Kids Love
My Nonnie was a gruff and funny woman who, even at Thanksgiving, put a huge slab of lasagna on our plates as an appetizer. Even with a turkey, mashed potatoes, sweet potatoes, breaded cauliflower, oil and vinegar salad, pumpkin pie,…
I’m a Mom with a Disability. Here’s How I “Run the Show” in My Family.
I have several roles and identities that add a lot of meaning in my life. First and foremost, I LOVE being a woman. I like pink and sparkles and unicorns. I was raised by some incredibly fierce women: my mother, …
Disabled People Have the Right to Raise Children
I didn’t see many families like mine growing up. All my childhood friends’ parents had cars and could drive. My mom was visually impaired and had Ehlers-Danlos syndrome. She was the first person to teach me that I shouldn’t be …
My Mother Thought I’d Be Better Off Dead Because I’m Disabled
Trigger warning: this post discusses, in graphic detail, abuse and violence against a disabled family member. I wait patiently to hear the truck crunch through the gravel-filled alleyway. I have 30 minutes – probably less. I scour the fridge for…
Why Finding Cures for Genetic Disabilities Shouldn’t Be Our Main Goal
Iceland was recently the subject of controversial headlines proclaiming that the country is “eliminating” Down syndrome through prenatal screening and subsequent termination of pregnancies. While these news stories were later found to be sensationalist, we need to discuss the …
Engaging in Politics as a Disabled Person: an Interview with Carrie Ann Lucas
Across the country, people are energized and politically engaged in response to the current political climate. Before you know it, midterm elections will take place next year across the United States. During these elections, it’s important to remember that local …
Homeschooling Should Be an Option for Disabled Students, But Not the Only Option
When I was in middle school, I begged my mother to homeschool me. I was struggling with the curriculum — I needed to be more challenged and more accommodated at the same time — and I was being bullied by…
How Having a Disabled Mom Helped Shape My Identity as a Disabled Woman
I grew up with a disabled mom. It meant that we didn’t have a car, because my mom was visually impaired and couldn’t drive. We walked to the grocery store weekly, took the bus to doctor’s appointments and the mall,…