Close up of three hands. An elder's hand lays between the hands of a younger person's two hands. All three fair-skinned hands rest on the younger adult's lap.

A Life Worth Living: An Elegy For My Mother

CONTENT NOTE: discussion of systemic ableism, death, end-of-life care, and euthanasia   My mother and I were always a team. When my Girl Scout troop had a roller skating party, my mom strapped skates to my feet, took hold of
Several white chrysanthemum flowers

Living (and Leaving) Diagnostic Labels

When I was 20 months old, I was diagnosed with what was then known as Juvenile Rheumatoid Arthritis (JRA). Recently, though, the terminology has changed to Juvenile Idiopathic Arthritis (JIA), reflecting the often ambiguous origins and trajectory of the illness.…