I’m Autistic. Here’s Why I Think Social Distancing Should Be Respected, Regardless of COVID-19

Two people standing on chalkboard with the word social distancing in between.

The following post is part of our series on perspectives from disabled and chronically ill people regarding COVID-19.


I am an autistic woman. I am also touch-averse.

I have been touch-averse for as long as I can remember. I have sensory-processing disorder, which often goes along with autism. It’s hard to describe to people who don’t have it, but it feels like all five of my senses are amplified. I am distracted by sounds that other people can tune out. I never get used to the tags on my clothing. Human touch reverberates throughout my body and overwhelms me.

Sensory-processing disorder affects my everyday life. I cringe even when close friends try to hug me. Business networking is brutal when I’m forced to shake hands with strangers. I hyper-focus on all the things their hands could have touched before mine. Because I have trouble reading people, I’m more comfortable keeping physical distance between myself and others so if they do something unexpected, I can be prepared.

People who don’t understand me think I’m weird. They think I’m rude because I’m not welcoming of touch, especially from strangers. In order to pass and make my way up the social hierarchy, I must forget any concept of my preferred personal space. The ramifications of not doing so cost me relationships and jobs.

The CDC has recommended that people stay at least six feet apart and practice social distancing to limit the spread of COVID-19. Easy enough, I thought. I do it all the time.

But why does it take a pandemic for people to finally understand and respect my choice to keep personal space? It’s not just me, but other people with conditions like OCD and those who have survived trauma. I feel cheated in a sense. After a lifetime of being forced to mask my aversion to touch, people are suddenly welcoming towards the idea of social distancing. Where was this acceptance before?

COVID-19 has created a weird time for us, because this is essentially the first time we can finally relax and distance ourselves the way we want to. No longer is anyone telling us that we wash our hands too frequently or that we should stand closer to our conversational partners. In fact, we’re even being praised for the same behaviors we were once shamed for. We’re told we’re following rules well and doing the right thing.

It has oddly been easier to maintain friendships during quarantine. The social norms that exist around how to greet friends no longer include hugs. My good friends have come to accept my dislike for hugs, but I come across as standoffish to new acquaintances. I think that’s why virtual connection has especially helped in my college courses. I’m able to focus on talking to new classmates rather than fixating on how close to me they’re sitting.

I have a right to my own body. I’m not rude or emotionally broken for prioritizing my own mental health. My choices should be respected. I want the same understanding towards social distancing to be extended after the COVID-19 pandemic.


Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights

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How Much Has the Americans with Disabilities Act Positively Impacted College Students?

A group of students in a lecture hall, sitting with several open seats in between each student. A student in a power chair sits at the bottom of the stadium-style lecture hall seating, separate from peers.

The Americans with Disabilities Act (ADA) has made great strides in equal access, but it has not accomplished nearly enough. As a recent graduate, I experienced first-hand the dichotomy between how the ADA has positively impacted the college experience, and where it is falling short.

Our disability resource center is located in the basement of a building in the center of campus. It is a quiet, non-stimulating environment with comfortable couches and staffed with counselors. However, the execution of ADA policy is a bureaucratic nightmare. Students frequently complain of the complicated process of testing accommodations. Much of the initiative is left to the student, and they must make their request at least 10 business days before the test. What are they to do if a test gets moved just a week prior?

Campus events often require 3 business days for accommodations, which is fine if you’re not spontaneous at all. Upon receiving a notetaker request, the resource center sends out a mass email asking the student’s classmates to volunteer to share their notes. The majority of students will dismiss this email, saying that the disabled student is “lazy” or “taking advantage of smarter people.” Students who request a notetaker find that their request goes unfulfilled, not because the ADA itself failed them, but because the ADA cannot force students to volunteer to support their peers.

The ADA will set standards for buildings, but it won’t enforce them on campuses where buildings are so old they’ve become historical landmarks. Colleges will list disability resources on the class syllabus, but the ADA won’t require them to verify that the information is still accurate since it was last updated in 2008.

The ADA will often provide assistance with campus housing accommodations. If you’re an autistic student, the ADA will enforce a request for a single room on the grounds of full participation and necessity for daily functioning. It won’t, however, give your accommodation priority over the football team’s reserved studio apartments, nor will it guarantee that your window won’t face the busiest street on campus. The ADA will not gift you a Resident Advisor with the proper training on how to interact with autistic people. And it will not provide you any protection for when your suitemate says “you don’t look autistic.”

The ADA will mandate that your classroom be accessible. It will make the college provide wheelchair accessibility, an interpreter, and CART captioning, but it won’t make you feel less awkward about being the only disabled person in the room. It won’t change how you’re called on to represent everybody with a disability or how none of the course material includes voices of prominent disability activists.

The ADA has provided support for disabled college students, and I thank all the activists before me that we are celebrating its 27th anniversary. Unfortunately, its accommodations and protections have been met with apathy and upheld with underwhelming policies. The laws are in place; now it’s time to change attitudes. Because of this, I will continue to use my college experience to continue my fight for disability justice.

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Rooted in Rights exists to amplify the perspectives of the disability community. Blog posts and storyteller videos that we publish and content we re-share on social media do not necessarily reflect the opinions or values of Rooted in Rights nor indicate an endorsement of a program or service by Rooted in Rights. We respect and aim to reflect the diversity of opinions and experiences of the disability community. Rooted in Rights seeks to highlight discussions, not direct them. Learn more about Rooted In Rights

Click here to pitch a blog post to Rooted in Rights.